David was born a healthy and happy baby.   He wasn’t a great sleeper and spit up all the time, but babies do that, right?  Some of his early milestones were also a little slow in happening but babies develop at their own pace, right?….

Our journey with Anna’s Alexander Disease diagnosis began over 21 years ago.  During infancy Anna had some feeding difficulties, was slow to achieve gross motor milestones and…

Mila was born a healthy baby.  Nahed and Gil Sarig were thrilled as they had experienced several miscarriages while trying for a second child.   Mila’s arrival was truly a blessing…

In the spring of 2015, Jordyn Conn wasn’t walking yet.  She had turned one, the previous December, but her parents were not overly concerned…

At 9 months old, Meris White was gagging and retching when her parents attempted to feed her pureed baby foods. Still, at her 9 month doctor visit…

Born in September 2011, Elise Bonsky is a bright, vibrant 8 year old. Early in life, she suffered from a few developmental delays and seizures…

Life has thrown some curve balls our way, but through it all I have been blessed and cannot complain.  I’m not saying it has all been easy as there have been peaks and many valleys…

Grayson lights up a room. I don’t know that there’s anybody who wakes up happier than Grayson…