For many, receiving the initial diagnosis of Alexander Disease is terrifying and isolating. The good news is: you are not alone. Whether you or someone in your family have been recently diagnosed, there is an entire community here for you. If you are here to support a friend or loved one with Alexander Disease or another leukodystrophy, there are so many ways for you to help.
Spread the word and show your support by showing up. It's invaluable. By attending meetings and conferences, speaking out about our experiences, participating in studies like the Natural History Study at CHOP, we give a voice to Alexander Disease and drive progress. By coming together, we push research and science forward faster.
With the Externally Led PFDD (Patient Focused Drug Development) process kicked off, you can use your voice to shape future regulatory decisions.
Your donations to End AxD are essential to our mission of finding effective treatments and an eventual cure for Alexander Disease.
Everything we are doing is geared toward improving the lives and outcomes of AxD patients.
Your donation will go towards life-saving research and to help support those affected by AxD.
10% of proceeds benefit End AxD
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