LATEST NEWS
AxD RESEARCHEnd Of Year Giving Invitation
December 15, 2023
Happy holidays to the Alexander Disease Community!As we celebrate the holidays, we are grateful for the blessings of community. 2023 has been a tough year for so many, but we remain grateful and hopeful. Hopeful for a treatment, hopeful for a cure, grateful for the clinical trial, and for all the Drs. and researchers who have dedicated their lives to find answers to ...
Save the Date! Golf Fore Grayson! - April 29th, 2024
October 6, 2023
We are back on the calendar for the 3nd annual Golf Fore Grayson! The tournament will be held on April 29th, 2023 at the Signal Mtn. Golf and Country Club.
United Leukodystrophy Foundation Conference '23 - AxD Session Links
September 8, 2023
Hey Alexander Disease Community! We're excited to share some highlights from the recent United Leukodystrophy Foundation conference, where the latest advancements in Alexander disease research and treatments were shared. Here's a recap of the sessions you won't want to miss:1️⃣ Alexander Disease Insights 🧬Learn about the most recent research breakthroughs and ...
Webinar Recording Available Now: AAV-medicated Gene Silencing (August 2023)
September 7, 2023
If you weren't able to join us on Sunday, August 6, 2023 for Dr. Gao’s update regarding “AAV-mediated Gene Silencing for the Treatment of Alexander Disease” the recorded version of the webinar is now available! Watch Recording Here
End AxD funds gene therapy research for Alexander disease
April 2, 2023
The foundation End AxD, a nonprofit dedicated to research, treatment and a cure for Alexander disease, has donated $74,000 to UMass Chan Medical School to explore a gene therapy treatment for the fatal neurological disease.
End AxD is excited to announce two new partnerships with leading universities.
February 23, 2023
A major gift was presented to the lab of Dr. Mel Feany M.D, Ph.D., a professor of Pathology at Harvard Medical School and Brigham and Women's Hospital. Funds from the gift will catalyze efforts to identify new approaches to treating Alexander Disease.End AxD has also chosen to partner with the UMass Chan Medical School and its Horae Gene Therapy Center to design a ...
Governor Lee got to meet some really special kids!
October 9, 2022
Governor Lee got to meet some really special kids as he signed legislation making April 7th End Alexander Disease Day in Tennessee!! Grayson Ledbetter, Cameron Copeland, Chayse Andrews and Meris White were rock stars!!! Thank you to our sponsors Rep. Esther Helton, and Senator Bo Watson! Let’s get other states to do the same. Let us know if you can help! ...
Promising treatment for Alexander Disease moves from rat model to human clinical trial.
September 17, 2022
https://www.waisman.wisc.edu/2021/11/17/promising-treatment-for-alexander-disease-moves-from-rat-model-to-human-clinical-trials/