End Of Year Giving Invitation
As we celebrate the holidays, we are grateful for the blessings of community. 2023 has been a tough year for so many, but we remain grateful and hopeful.
Save the Date! Golf Fore Grayson! - April 29th, 2024
We are back on the calendar for the 3nd annual Golf Fore Grayson!
United Leukodystrophy Foundation Conference '23 - AxD Session Links
We're excited to share some highlights from the recent United Leukodystrophy Foundation conference, where the latest advancements in Alexander disease research and treatments were shared. Here's a recap of the sessions you won't want to miss:
Webinar Recording Available Now: AAV-medicated Gene Silencing (August 2023)
If you weren't able to join us on Sunday, August 6, 2023 for Dr. Gao’s update regarding “AAV-mediated Gene Silencing for the Treatment of Alexander Disease”
End AxD funds gene therapy research for Alexander disease
The foundation End AxD, a nonprofit dedicated to research, treatment and a cure for Alexander disease, has donated $74,000 to UMass Chan Medical School to explore a gene therapy treatment for the fatal neurological disease.
End AxD is excited to announce two new partnerships with leading universities.
A major gift was presented to the lab of Dr. Mel Feany M.D, Ph.D., a professor of Pathology at Harvard Medical School and Brigham and Women's Hospital.
Governor Lee got to meet some really special kids!
Governor Lee got to meet some really special kids as he signed legislation making April 7th End Alexander Disease Day in Tennessee!!
Promising treatment for Alexander Disease moves from rat model to human clinical trial.
Promising treatment for Alexander Disease
New Community Statement on the Alexander disease program from Ionis
Please see the latest community statement on the Alexander disease program from Ionis.
Welcome to End AxD
We're excited to launch End AxD as a place for us to merge our individual efforts into one group project to End Alexander Disease